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Very few women know the facts about PBC , or primary biliary cholangitis. Formerly known as primary biliary cirrhosis. PBC is a rare liver disease that primarily results from autoimmune destruction of the bile ducts that transport bile acids out of the liver, resulting in cholestasis. Ninety percent of people living with PBC are women, with 1 in 1,000 women affected being over the age of 40.
PBC is a progressive autoimmune disease that affects the bile ducts in the liver. So progressive in fact, that it has been the second-leading overall cause of liver transplant in women in the United States, behind hepatitis C since 1988. Yet with such startling statistics, it is surprising that there is such a lack of awareness of the condition by women in the U.S.
It is important that women across the country fuel the conversation about the prevention of PBC in order to bring about a higher place of awareness and understanding on something that impacts the health of such a significant percentage of the female population. It is also equally important for women who are currently living with PBC to equip themselves with the information and resources to manage the disease and symptoms in order to prevent serious health issues and the possible need for liver transplant.
The time is now to get the work started to take the limits off of the lack of information available about primary biliary cholangitis. Let’s encourage and educate women everywhere to cultivate a better understanding of their bodies, and to become better advocates for their health by striving to get the right doctors, testing, and to ensure the proper diagnosis and treatment of PBC. It is only when women empower themselves and each other can a true and positive difference be made.
Get more information on the condition and hear from those living with the condition at LivingwithPBC.com.